Seems like it's been that long since I've posted here anyway, lol. Been busy, wish I could tell you I've been busy making tons of Art (with a capital "A" mind you) and making tons O'Cash. Nope.
But I wish I could, lol.
I've been pretty sick, the weather has FINALLY started to change for the better and since that affects me severely anymore, that has been a big factor in me doing ANYTHING.
So, the weather has gotten a little better and so have I. Then I feel pretty good on the nice days and do crazy stuff like I'm my old self. Crazy stuff: take the girls out in the boat and row around the lake and the island. Two hours later: OUCH my lower back had a fit and spazzed all the way out. Then I threw up from the nausea from the pain. Then I passed out from exhaustion---not from going out in the boat mind you but from the back spasms that came afterwards.
Some days are diamonds, yes, and some days are just shit.
The diamond days are few but they make up for the poo days but it takes a lot of work to stay upbeat. Some days I don't make it either but frankly, everyday I don't give up is a positive day. And when I say "give up" I don't mean acknowledge that I am unable to do what I wanted to do for the day and I must take to my bed to rest and take it easy. I mean give up and take to my bed from depression due to the fact that I can't do a damn thing due to pain and exhaustion from pain or whatever illness, nausea BS my body is going through at the given time. Giving up. Not wanting to go on with life. Conceding defeat and that this bullshit condition wins and is great than my will. NOT! I have this illness, it doesn't have me. As long as I can choose my attitude I choose to go on. And it's hard but the alternative wait...what alternative you ask? Well, *THAT* alternative that I refuse to discuss, because I don't have time for it. The leading cause of death of people with Fibromyalgia (FMS) is suicide. I would be lying if I said I had never ever thought about it. There have been some episodes in the past where I was so sick I thought I was dying and then got even sicker and was actually afraid I wasn't dying fast enough. Dark, dark days. I ended up in the hospital (more than once) due to the fact that I was actually so physically sick I was very close to dying. Uh duh, right? Not so, it's like having the worst flu EVER and being run over by a truck, you are pretty much out of it. Or want to be if you are coherent enough to think.
Fibromyalgia and/or CFS (I do have both) by themselves rarely fatal. In my case, I have Chronic Epstein Barre Virus (CEBVS) also known as Severe Chronic Active Epstein-Barr Virus (SCAEBV) in addition to having FMS, CFS, Diabetes and a super long list of problems/conditions that (now I know) were mostly stress induced, which helps me by me minding my stress level now but the major damage is done.
CEBVS makes everything else more serious if I go out of "remission" for lack of a better word, so in my case, FMS can become fatal if paired with a CEBVS episode if I'm not very careful. CEBVS is basically like a severe case of Mononucleosis (EBV is commonly known as mono or the kissing disease) but the difference with CEBVS is that you've got "Mono for LIFE" . Oh Mono, lots of people think, the kissing disease...not serious...
But...in SCAEBV which is a rare Epstein-Barr virus associated disorder (which of course, my luck you know, rare=weird with doctors in general, lol) this disorder can cause chronic tiredness and fevers and sometimes be complicated by life threatening problems such as multi-organ failure, chronic (ongoing) pneumonia, and lymphoproliferative diseases (diseases involving the lymph nodes which could eventually show up as leukemia or a tumor). The reasons for the body's inability to control the EBV infection are still unknown and no effective treatment is currently available.
So...at the first signs of a possible CEBVS episode, I clear my calendar and concentrate on doing everything within my power to avert it. I also always keep in mind not to over-do, not to skimp sleep, eat regularly, take it easy and plan relaxing and self care measures and follow through.
That said, I really went off here, I see that now, lol, but it's rest time again and for now, I'm outta here...just another "day in the life"...Hope y'all have a great one! :)
